[a creative nonfiction but that was just rejected for publication] I spent the better part of the last 20 years letting three children suck the life out of me. They consistently depended on my help at all kinds of ungodly hours. Preschool aged mornings were the worst. I had twin girls, one of whom had […]Read more "The Lovely Eggs "
In 1997 I was dragged into the world of Medicaid Service Coordination by my developmentally disabled daughter who desperately needed services. I was yelling and screaming at everyone then and unfortunately haven’t been able to stop since. There have been many roles for me personally and professionally as a direct provider and advocate. I’m not […]Read more "Dying is easy, it’s living that’s hard. "
I had a greatest generation Dad. The kind of guy who worked, went to church and had a chair that was reserved, by law, for him in front of the tv. You didn’t see this type of Dad much unless you were in trouble or he needed a socket wrench. Except my dad didn’t use […]Read more "Dad was Different…."
Parents of disabled kids are always on the internet yammering away about something tragic or poignant. Some are more elegant than others (see the exceedingly beautiful essayhttp://velamag.com/superbabies-dont-cry/), but all parents of “specials” experience our children in a pointedly unique way. To put some corporate jargon spin on it, we are afforded more opportunities to “syngerize” […]Read more "Entitlement Benefits: Part 1 of the Disability Holy Trinity"
Bless your heart, Brian Reed. I can almost officially say that as a transplanted Southerner but it really means nothing coming from me. Although I believe that I live in the South, and the Ohioans I left behind definitely think I live in the South, folks here in Southeastern Virginia are quick to remind me […]Read more "BlessdTown: My S-Town Experience"