Five Things I Hate About Summer: yeah a listicle.

1. The Heat Summer needs to go into a hole and die. I spent no more than seven minutes outside today and it will take at least 30 minutes of ice water and AC just to get to baseline. The only time sweating is ever relaxing is in the steamroom in January. When I was […]

Dying is easy, it’s living that’s hard.

In 1997 I was dragged into the world of Medicaid Service Coordination by my developmentally disabled daughter who desperately needed services. I was yelling and screaming at everyone then and unfortunately haven’t been able to stop since. There have been many roles for me personally and professionally as a direct provider and advocate. I’m not […]

Mitch McConnell Officially Makes my Shit List.

We are the stories that we tell ourselves…. It’s a psedo-businessey mantra that I have laminated in my office to remind myself of something, but I’m not sure what that would be today. Today was a bad day. I had no good story to tell myself but instead felt like someone else was narrating a […]

Dad was Different….

I had a greatest generation Dad. The kind of guy who worked, went to church and had a chair that was reserved, by law, for him in front of the tv. You didn’t see this type of Dad much unless you were in trouble or he needed a socket wrench. Except my dad didn’t use […]

As the Truck Says…

Thanks to a fatal car crash on Interstate 70, I took a detour last week through Trump country. I equally commiserate with and loathe these people. Being ½ hillbilly myself, I’ve suppressed many comments at family gatherings about politics in general and Mr. Trump specifically. I realize that this makes me part of the problem but […]

Jared Kushner is a Dick.

This is a print of a Banksy work in my office.

So America Chose a Crazy Partner, Who Hasn’t?

So we bedded down with a nut job with crazy hair who promised us the moon. Totally sounds like my love life in the late 1980’s. We threw it all away, bet it all on black and now found ourselves vomiting in the well apportioned toilet of a rich guy we met at happy hour […]

Doctors: The Disability Trinity Part Three

If you care for a child with autism you are likely to see a bizarre set of what seem to be random medical professionals. Pro tip: only a few of them will know about anything about autism. I know it may sound weird that someone could get through medical school and know so very little […]

School: The Disability Trinity Part II

There are days when I wake up and see the goodness in almost everyone. I feel well rested, refreshed and ready to face the day in peace with a renewed sense of purpose. I attribute this feeling 100% to the fact that I will never have to attend another fucked up IEP meeting ever again. […]

Entitlement Benefits: Part 1 of the Disability Holy Trinity

Parents of disabled kids are always on the internet yammering away about something tragic or poignant. Some are more elegant than others (see the exceedingly beautiful essayhttp://velamag.com/superbabies-dont-cry/), but all parents of “specials” experience our children in a pointedly unique way. To put some corporate jargon spin on it, we are afforded more opportunities to “syngerize” […]