Right before Thanksgiving I was sitting down to write a blog post about how at times, I’m really glad that both of my parents are dead. And I was, and it truly is, and then my caregiver skills (e.g. warm body) were desperately needed and it was at that very moment that I remembered that […]
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Like most Americans, I’ve spent the better part of the last 16 months of this pandemic developing new hobbies. Mine has been getting angry at everyone online. Maybe that’s not really a new hobby but it sure is time consuming. As an aging American woman, there’s a seemingly endless supply of things to get angry […]
Read more "I’m Just Here. Trying to Not Lose My Mind."
On World Autism Day I took my adult autistic daughter to get a cystoscopy. The fun, it never ends. I’m not going to go into the myriad of probably stress related medical issues that led to the procedure but suffice to say she has averaged one medical appointment a week in the past year. The […]
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Well, well, well. So here we are, 2021. Almost every second of this past year included so many teachable moments. You could say it was a year where everyone was an exceptional parent. That’s the term used in the US to describe someone who ends up with a special needs child; the Exceptional Parent. These […]
Read more "2020: The Masked Zinger"
I have struggled, am struggling and will continue to struggle with keeping my adult autistic daughter at her apartment during this COVID-19 outbreak. She is unable to attend any sort of day program (which are all closed due to the virus, anyway) and instead fills her days with a meticulous calendar of events all of […]
Read more "Your COVID-19 New Normal is My Regular Normal."
I know a lot of you are freaking out over COVID-19 right now. I see my middle-aged buds with no mitigating health issues making trips to Costco like Jesus is coming. I see you. I know something about panic. I’ve watched helplessly as my autistic daughter panics over seemingly nothing for years. She has complete […]
Read more "Autism Benefits: COVID-19? Add it to the Pile."
Welp. all praises to tiny baby Jesus that Christmas is over. Next year will be different. I can’t change that my autistic daughter loves the holiday, and associates it with travel and visiting people…and seriously I should be thrilled that she has any happy memories considering all I can remember from her childhood are the […]
Read more "Holiday Follow Up. No One Died."
24 years ago I became the mother of twins. They were gorgeous, full term bright-eyed girls who looked nothing alike. One had piercing, dark blue almond eyes and a very serious expression, the other had big, round grey blue eyes and was always looking beyond you. The round-eyed baby was etherial and her eyes would […]
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I don’t know who Paul Thompson is but he has written what sounds like an awesome book, Aim Low: A Story About Lowered Expectations. I may read it, or listen to it or whatever I have to do to consume this material. I’m still slogging through the end of Vulgar Favors—the rest of the book […]
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