On World Autism Day I took my adult autistic daughter to get a cystoscopy. The fun, it never ends. I’m not going to go into the myriad of probably stress related medical issues that led to the procedure but suffice to say she has averaged one medical appointment a week in the past year. The […]Read more "World Autism Day"
Well, well, well. So here we are, 2021. Almost every second of this past year included so many teachable moments. You could say it was a year where everyone was an exceptional parent. That’s the term used in the US to describe someone who ends up with a special needs child; the Exceptional Parent. These […]Read more "2020: The Masked Zinger"
I have struggled, am struggling and will continue to struggle with keeping my adult autistic daughter at her apartment during this COVID-19 outbreak. She is unable to attend any sort of day program (which are all closed due to the virus, anyway) and instead fills her days with a meticulous calendar of events all of […]Read more "Your COVID-19 New Normal is My Regular Normal."
I know a lot of you are freaking out over COVID-19 right now. I see my middle-aged buds with no mitigating health issues making trips to Costco like Jesus is coming. I see you. I know something about panic. I’ve watched helplessly as my autistic daughter panics over seemingly nothing for years. She has complete […]Read more "Autism Benefits: COVID-19? Add it to the Pile."
The one where I recap my last year.Read more "I’m the Queen of Shit Mountain: A 2019 Retrospective"
Welp. all praises to tiny baby Jesus that Christmas is over. Next year will be different. I can’t change that my autistic daughter loves the holiday, and associates it with travel and visiting people…and seriously I should be thrilled that she has any happy memories considering all I can remember from her childhood are the […]Read more "Holiday Follow Up. No One Died."
24 years ago I became the mother of twins. They were gorgeous, full term bright-eyed girls who looked nothing alike. One had piercing, dark blue almond eyes and a very serious expression, the other had big, round grey blue eyes and was always looking beyond you. The round-eyed baby was etherial and her eyes would […]Read more "Excavating your kid’s life"
I don’t know who Paul Thompson is but he has written what sounds like an awesome book, Aim Low: A Story About Lowered Expectations. I may read it, or listen to it or whatever I have to do to consume this material. I’m still slogging through the end of Vulgar Favors—the rest of the book […]Read more "Lowered Expectations"
As a former hot girl let me tell you that being fat does have it’s good points. I’m keeping this in mind as I look over the results of my latest Lipid profile blood test: This isn’t good. Nor is it normal for me. Two years ago, I pinched a nerve in my neck and […]Read more "What will Kill me First? Fat or Fat?"
My autistic daughter turned daughter-with-autism turned back to autistic daughter will be 24 this year. She lives in her own apartment that is monitored by staff 24 hours a day. She does get out and about but she should be at some sort of structured workshop everyday. But she has been unable to find a […]Read more "Autism Acceptance Month"