I have struggled, am struggling and will continue to struggle with keeping my adult autistic daughter at her apartment during this COVID-19 outbreak. She is unable to attend any sort of day program (which are all closed due to the virus, anyway) and instead fills her days with a meticulous calendar of events all of […]Read more "Your COVID-19 New Normal is My Regular Normal."
I know a lot of you are freaking out over COVID-19 right now. I see my middle-aged buds with no mitigating health issues making trips to Costco like Jesus is coming. I see you. I know something about panic. I’ve watched helplessly as my autistic daughter panics over seemingly nothing for years. She has complete […]Read more "Autism Benefits: COVID-19? Add it to the Pile."
The one where I recap my last year.Read more "I’m the Queen of Shit Mountain: A 2019 Retrospective"
Welp. all praises to tiny baby Jesus that Christmas is over. Next year will be different. I can’t change that my autistic daughter loves the holiday, and associates it with travel and visiting people…and seriously I should be thrilled that she has any happy memories considering all I can remember from her childhood are the […]Read more "Holiday Follow Up. No One Died."
24 years ago I became the mother of twins. They were gorgeous, full term bright-eyed girls who looked nothing alike. One had piercing, dark blue almond eyes and a very serious expression, the other had big, round grey blue eyes and was always looking beyond you. The round-eyed baby was etherial and her eyes would […]Read more "Excavating your kid’s life"
I don’t know who Paul Thompson is but he has written what sounds like an awesome book, Aim Low: A Story About Lowered Expectations. I may read it, or listen to it or whatever I have to do to consume this material. I’m still slogging through the end of Vulgar Favors—the rest of the book […]Read more "Lowered Expectations"
As a former hot girl let me tell you that being fat does have it’s good points. I’m keeping this in mind as I look over the results of my latest Lipid profile blood test: This isn’t good. Nor is it normal for me. Two years ago, I pinched a nerve in my neck and […]Read more "What will Kill me First? Fat or Fat?"
My autistic daughter turned daughter-with-autism turned back to autistic daughter will be 24 this year. She lives in her own apartment that is monitored by staff 24 hours a day. She does get out and about but she should be at some sort of structured workshop everyday. But she has been unable to find a […]Read more "Autism Acceptance Month"
When my daughter was first diagnosed with autism, a nurse told me a story that sticks with me like a bad penny. Nurse Sally was working for a cluster of group homes run by a nationwide charity. One day at a staff meeting it was revealed that one of the male residents had sexually assaulted […]Read more "Abusers Will Come Wrapped in a Flag and Carrying Meds."
I have had about 12,000 unwanted human interactions as the result of having an autistic kid. Sometimes it’s with a doctor who is asking me for minute details of her development that there is NO WAY IN HELL I will be able to recall, sometimes these interactions are with the police when my child has […]Read more "Are you there, God? It’s Me Autism."