Lots of us live in the past. I spend too much time there, in the what if’s and should have’s that only make me feel bad. Regret is that pet you buy but you can’t take care of and never leaves your memory. I live with the revolving door of my autistic daughter’s memory. She […]Read more "That Autism Memory Loop"
It’s been one year since I moved my then 22 year old autistic daughter into her supported living apartment. As part of the transition, the apartment was set up weeks before she moved. She visited a few times before the move so she had a visual picture of what she new home would be like. […]Read more "A Year Without Autism"
[a creative nonfiction but that was just rejected for publication] I spent the better part of the last 20 years letting three children suck the life out of me. They consistently depended on my help at all kinds of ungodly hours. Preschool aged mornings were the worst. I had twin girls, one of whom had […]Read more "The Lovely Eggs "
David Brooks sure hit a nerve this week. With his very subtly titled New York Times op-ed about how the snobs are beating the slobs. I think we’ve seen this movie like 10,000 times already. He pisses all over fancy ladies barre classes and buying upscale strollers as if women’s consuming habits are really the […]Read more "David Brooks Needs Some Fucking Manners."
If you care for a child with autism you are likely to see a bizarre set of what seem to be random medical professionals. Pro tip: only a few of them will know about anything about autism. I know it may sound weird that someone could get through medical school and know so very little […]Read more "Doctors: The Disability Trinity Part Three"
Parents of disabled kids are always on the internet yammering away about something tragic or poignant. Some are more elegant than others (see the exceedingly beautiful essayhttp://velamag.com/superbabies-dont-cry/), but all parents of “specials” experience our children in a pointedly unique way. To put some corporate jargon spin on it, we are afforded more opportunities to “syngerize” […]Read more "Entitlement Benefits: Part 1 of the Disability Holy Trinity"
For shits and giggles, I occasionally subject myself to Autism research. I like knowing that so many smart people all over the world are pouring their lives work into Autism. I used to follow it like some people follow sports. Way back in 1998 I went to the national autism society of america conference in […]Read more "Parents, use that autism research wisely."
In 1987 I was sitting in a sociology survey class at Ohio State and read a book that was designed for people born, as I was, in 1968. The instructor was a Baby Boomer and also the author of the book. He was professorially gleeful in reminding us how much that my generation X owed […]Read more "I Want My 90’s Back"
All God’s children are their own special brand of pain in the ass. And don’t be smug those of you with “great kids” because sometimes their flaws are latent and festering. You won’t know that your kid is a serial killer until they are well into their 30’s. Sometimes you can’t see this shit until […]Read more "World Autism Day or as I Know it: Day"