As a former hot girl let me tell you that being fat does have it’s good points. I’m keeping this in mind as I look over the results of my latest Lipid profile blood test: This isn’t good. Nor is it normal for me. Two years ago, I pinched a nerve in my neck and […]Read more "What will Kill me First? Fat or Fat?"
My autistic daughter turned daughter-with-autism turned back to autistic daughter will be 24 this year. She lives in her own apartment that is monitored by staff 24 hours a day. She does get out and about but she should be at some sort of structured workshop everyday. But she has been unable to find a […]Read more "Autism Acceptance Month"
When my daughter was first diagnosed with autism, a nurse told me a story that sticks with me like a bad penny. Nurse Sally was working for a cluster of group homes run by a nationwide charity. One day at a staff meeting it was revealed that one of the male residents had sexually assaulted […]Read more "Abusers Will Come Wrapped in a Flag and Carrying Meds."
I have had about 12,000 unwanted human interactions as the result of having an autistic kid. Sometimes it’s with a doctor who is asking me for minute details of her development that there is NO WAY IN HELL I will be able to recall, sometimes these interactions are with the police when my child has […]Read more "Are you there, God? It’s Me Autism."
Lots of us live in the past. I spend too much time there, in the what if’s and should have’s that only make me feel bad. Regret is that pet you buy but you can’t take care of and never leaves your memory. I live with the revolving door of my autistic daughter’s memory. She […]Read more "That Autism Memory Loop"
It’s been one year since I moved my then 22 year old autistic daughter into her supported living apartment. As part of the transition, the apartment was set up weeks before she moved. She visited a few times before the move so she had a visual picture of what she new home would be like. […]Read more "A Year Without Autism"
[a creative nonfiction but that was just rejected for publication] I spent the better part of the last 20 years letting three children suck the life out of me. They consistently depended on my help at all kinds of ungodly hours. Preschool aged mornings were the worst. I had twin girls, one of whom had […]Read more "The Lovely Eggs "
David Brooks sure hit a nerve this week. With his very subtly titled New York Times op-ed about how the snobs are beating the slobs. I think we’ve seen this movie like 10,000 times already. He pisses all over fancy ladies barre classes and buying upscale strollers as if women’s consuming habits are really the […]Read more "David Brooks Needs Some Fucking Manners."
If you care for a child with autism you are likely to see a bizarre set of what seem to be random medical professionals. Pro tip: only a few of them will know about anything about autism. I know it may sound weird that someone could get through medical school and know so very little […]Read more "Doctors: The Disability Trinity Part Three"
Parents of disabled kids are always on the internet yammering away about something tragic or poignant. Some are more elegant than others (see the exceedingly beautiful essayhttp://velamag.com/superbabies-dont-cry/), but all parents of “specials” experience our children in a pointedly unique way. To put some corporate jargon spin on it, we are afforded more opportunities to “syngerize” […]Read more "Entitlement Benefits: Part 1 of the Disability Holy Trinity"